Dear All

I assume that you are here because you have a sibling or relative, or your relative has a relative that has an extra chromosome. 
Maybe you are here because you just found out you are carrying a baby with 47 chromosomes.
 Maybe you have just delivered and find out about Down Syndrome.
 Maybe you are just one of my friends, or Leyla's friends.  
Maybe you are just curious. 
In any case let me introduce you, by means of little windows, into a not so well known world of DS. 
I hope you find what you are looking for here and may it help you to keep the dreams you have for your children alive.
In Love.
Rosa Davila

About Me

My photo
I am a Therapeutic Massage Practitioner, highly trained in Aromatherapy. I have studied Natural Nutrition and Iridiology. I threw my Naturopathic studies to the side in order to follow my other half to the USA. I gave birth to my beautiful girl In April 2009. She was born with Down Syndrome. I am know aplying all my knowledge to researching T21 and how to best help her naturally and holistically. What a journey! During the first weeks after learning of my daughters diagnosis I spent hours on the internet searching for a modern image of Down Syndrome. I found it, and with it the hope, courage and calm that allowed me to keep dreaming for my baby. With this blog I hope to gather information about people with DS, their lives, epics and struggles. I hope to bring people closer to their hearts, warm them up about DS. There is so much misinformation, outdated research and prejudice. If you have something you think is worth for me to post here, please do not hesitate to let me know. Thanks. Have a great journey into Wonderland.

Thursday, February 25, 2010

The incredible story of Judith Scott.

  This is a page dedicated to Judith Scott. An amazing artist, an amazing journey, an incredible story. Please take your time to read it. And breathe.

There is a little video you can find in Youtube. Unfortunately embedding is not possible.


Tuesday, February 23, 2010

Chris Burke

 Chris Burke is an Actor. Some of you may have seen him on TV shows. 
 He is a great advocate


Kevin Pearce miracle

 This is the story of snowboard olympic athlete that had a crash and suffer brain damage. he happens to have a brother with DS. This clip is about his family and his miracle survival.
I cannot find anything of better quality. It is worthy it. 

Sunday, February 21, 2010

The ringer

This little clip is from a movie. The Ringer 2005. 
I hope you like it.

Friday, February 19, 2010

World Syndrome Day

   3 21 is the date chosen to mark World Syndrome day. 3 is for the number of chromosomes and 21 because of the pair they are found. Just in case someone didn't know...

  This amazing documentary is coming up on that date and you can watch its premier on line for free! It has already won prizes and all that jazz. I hope you browse a little bit till the 3/21. The director is an awesome woman and the main artist in the documentary are quite something. 
 You are truly going to enjoy this. I promise.

On Fairy Tales

 If you ever Loved or Hated Snow White this should come as a surprise

Sunday, February 14, 2010

A beautiful project

  This one melts my heart.

Sunday, February 7, 2010

Australia Day Embassador

  Tonight I am going to bed feeling extremely inspired by this young woman. She is an extraordinary sportswoman from Australia. Her name is Gabrielle Clark.
I am sure you are going to be impress with her.


Friday, February 5, 2010

Birth story

I know it is time I get a bit more personal. And I will, I promise. however let me just recommend you an amazing birth story, or rather and amazing narration. I do believe that all birth stories are amazing.

Lithium and Thyroid

Well, as I suspected there is a link between Lithium usage and thyroid imbalances. This is what I was just dreading. After all my excitement. The problem is that we really do not know how this large quantities of Lithium carbonate would affect our children. It is known that bi-polar people treated with it tend to get hypothyroidism but they are also older and the quantities are enormous. However, for them keeping track of the thyroid functioning is nothing if you think of the high suicidal rate amongst this population. The high doses they are put on may not be neccesary for people with Don Syndrome. The study I mentioned in my previous post used 2.4g/kg in mice. I do not think they checked these mice thyroid.

Our kids tend to hypothyroidism and are checked frequently so one could decide that they have nothing to lose and many neurons to gain... We gave Leyla 2.5mg of Lithium Orotate a day and we did see improvement within a week. She started combat crawling and rolling all over the place. We took the dose to 5mg and after a week she developed a corse throat in the mornings. That is what led me to think of the thyroid connection. We stopped inmediately! She is no longer rolling all over the place and her crawling hasn't improved. We are considering reintroducing it at a lower dose and see. We are due for a thyroid check up in a couple of months...

We have also finally started with the LongVida Curcumin. We have been on it for a week at half the recommended dose and we haven't just yet seen anything that calls for celebration. Maybe once we get to the recommended dosage.

All in all Leyla is doing great but we can stop been vigilant. She will be re-evaluated for EI (Early Intervention) on 26 February and I cannot wait o hear what her therapist have to say of her progress. Who knows maybe the curcumin kicks in and she will be crawling like a pro by then. Why not?