I am a Therapeutic Massage Practitioner, highly trained in Aromatherapy. I have studied Natural Nutrition and Iridiology. I threw my Naturopathic studies to the side in order to follow my other half to the USA. I gave birth to my beautiful girl In April 2009. She was born with Down Syndrome. I am know aplying all my knowledge to researching T21 and how to best help her naturally and holistically. What a journey!
During the first weeks after learning of my daughters diagnosis I spent hours on the internet searching for a modern image of Down Syndrome. I found it, and with it the hope, courage and calm that allowed me to keep dreaming for my baby. With this blog I hope to gather information about people with DS, their lives, epics and struggles. I hope to bring people closer to their hearts, warm them up about DS. There is so much misinformation, outdated research and prejudice. If you have something you think is worth for me to post here, please do not hesitate to let me know. Thanks. Have a great journey into Wonderland.
Well, Leyla finally had her Early Intervention Program (EIP) evaluation done yesterday. At 5 months old I won't necessarily call it early. Obviously and thanksfully she didn't desperately needed it. We are SO lucky she is so healthy. My heart goes to all the families that have to overcome so many heart operations to start with.
Needless to say she did well and all the work I put into actually doing what the books recommend (Gross Motor and Fine Motor Skills for Children with Down Syndrome, Woodbine house)has paid off.
As a matter of fact the comments we got from the evaluators, were kind of unbelievable. It appears that at this stage, and things may change any minute, she only qualifies for the program because of her diagnosis of DS, not because she shows any delay. In fact se would be at the top of typically developing children charts!
I finally felt proud and my heart beat furiously in love once again. I realized it had stopped one gloomy day in May at a doctors office where my daughter was left behind as in the morgue. And at her side was left her mourning mother.
Well, my daughter, if not the one I dreamt of and thought I delivered, but the one with a little too much of either of her parents finally gets her emotional mother back. Not the one that just stoically do the job but the one that absolutely adores her and is prepared to stand by her at any cost, ready to have her heart torn open again and again, not because of the pain that her challenges will bring but because of the torrential Love that comes from the open heart of a Mother.
The lightness of heart that I have been so familiar with since my encountering with sufism is back. I have been chanting quite a bit lately. One of the things I have been praying for is meeting peers with Down Syndrome for Leyla. Today I have finally heard of a baby born with DS in July. I hope to be able to meet with the family soon.
Well, I have finally done it. I have created a blog. I am not sure I can cope with all this tech but I will try.
Leyla, my sweet little daughter is the reason behind this new adventure. I have no intention of writing politically correct stuff nor I will indulge in political discourse of any kind. I just simply would like to invite you all to share my journey into the unknown world of Down Syndrome and make you participate in my scary little voyage. Here I will explore my fears, my hopes, expose the highlights of my new found humour, and make our Love contagious. More than anything this is an attempt to keep up with friends in both sides of the Atlantic as well as make some new ones.
So fasten your belts and enjoy the ride "Down the rabbit hole into Wonderland"