Last Supper

Dear All

I hope you like this. I am open to dialogue. Yes, it is juicy, it is art.
Love
Rosa

By the way you can click to enlarge. The artist is Raoef Mamedov. Google him if you like his photographs are something else.

Like water to chocolate

My cousin Raul has sent me this piece of nostalgia. I was amazed by how much Leyla and I are alike. What do you guys think?
xxx

From Spain

Dear all

This movie has just opened in Spain. A love story between a guy with DS and a person with the right number of chromosomes.
The protagonist Pablo Pineda is, in his real life, the first European with Down Syndrome that has gained two university degrees. He is a Teacher and Pedagogist!.
Thanks Raul for passing this on.
There it is a trailer.

High as a kite!

Dear All

I am busy bee. Flying between bureaucracy with EIP (Early Intervention Program) trying to get speech therapy for Leyla, buying 1 inch wood cubes, not easy to come by, clearing cupboards for the winter, getting a ticket for Spain, arranging meetings with mothers of children with DS and creating a whole new world around me.
I found this video and hope you like it.
More soon...I promise

Tastes

I wonder wheather Leyla's liking the Kimonos has anything to do with her newly acquired ethnicity.
I am for a giggle tonight....

misunderstanding

Yes my dears. People seems to think that Leyla is an adopted Asian child. We keep hearing the question: is she adopted? I never thought I'd have the nerve to ask such a question myself. Obviously it is not such a big deal for some people. I love smacking them in the face. No, DOWN SYNDROME. Ah!, that is another terrain. You can hear them think -Let's get out of the store quick. How embarrassing! So much misunderstanding... My favorite however is the one that Carl gets when carrying Leyla in the Babyborjn pack and I am out of sight. Is the mother Asian descent? Yeah, as asiatic as Spanish rice. I do not know, maybe I should take it as a compliment but I wonder wheather Asian people would. So much misunderstanding.
Oh well. I simply laugh. And sure enough laughter is the best medicine at the moment.

Oops!

I forgot to mention that the pictures are from Indiana Modern Art Museum. I love fashion so we went to see the exhibits on the history of fashion. Leyla Loved the Kimonos, the rest she couldn't be bother and fell sleep.

busy or what?

  We have been back for almost two weeks and we are finally starting to feel at home. I have been busier than ever, cleaning and preparing for the Autumn. I have been looking for some new recipes to add to the winter menu and crochet projects to finish all the yarn in my, I mean Leyla's, wardrobe. 

I have also been buying play mats on line. We decided on the expensive, no lead, purple and pink mats. Hopefully they arrive before next Friday, the scary day when I begin to day care for Henry, Mindy's baby. I know I am crazy but I want Leyla to have a friend around. It's just once a week. I think it will work. Hence the mats, so that they can roll around or whatever baby's do. I am soon to discover. I'll also needed them for Leyla's PT.

       Talking about buying. I have been shopping for a ticket to Spain. It looks like I will manage to make it between Thanks Giving and Christmas. I may scape the snow!

      What else happened this week? Oh, yes. we went to the doctor and found out that Leyla is almost sixteen pounds! No wonder my arms and thighs are so toned. She is doing well and we are just going to have her eyes checked. Something of a wondering eye.... 26 Oct.

    Early Intervention Therapy also started and once again the therapist was very impressed with Leyla's tone and state of development. She gave me some more exercises to gain more upper body control and we aim to get her sitting on her own, banging two toys together, rolling both sides continuously and probably something else in the next couple of months. 

   We have also finally joined the Flower City Association, the Rochester group for Down Syndrome and registered for the Buddy Walk. So now it is official, we are walking the mile in Awareness for Down Syndrome. Those of you who would like to join us please let me know and we can make arrangements. 

And the best of all, we have heard of a baby girl born with Down Syndrome in Rochester. She even shares Leyla's birth date! The therapist is going to try to hook us up. I hope it works.

The Flower City people said they know of a baby born in July so I hope we can all get together and start a little playgroup. It makes me feel better.

So. I keep painting smiles in my heart. 

For now, that is all.

As soon as I get some kind of "room of my own" again I will be able to post cool stuff. I can only do basic keep up now.

Stay tuned!

Love, Light and Laughter 

Rosa